Specialty Clinics for Chronic Conditions

The cerebral palsy clinic provides multidisciplinary care to children with spasticity and cerebral palsy. Seeing multiple specialists in one appointment allows for better communication among providers and for more coordinated care of your child. During an appointment at the clinic, your child may be seen by specialists in:

• Orthopedic surgery
• Neurology
• Nutrition
• Orthotics
• Durable medical equipment

The cerebral palsy clinic is held on the second, fourth, and fifth Wednesdays of the month. Please call 314-268-4051 for more information or to schedule an appointment.

At the Down syndrome center, we aim to improve the quality of life of children with Down syndrome by providing medical care from a multidisciplinary team of talented specialists, coordination of services, and education and support for families. This helps ensure that each child’s medical, developmental, and therapeutic needs are being met.

The number of specialists your child sees will depend on his or her unique needs and may include specialists in:

• Genetics
• Developmental pediatrics
• Otolaryngology (ENT)
• Audiology

We will work closely with your primary care provider (PCP) and ensure integration of specialty care with ongoing treatment. We will provide a comprehensive report summarizing your child’s visit to both you and your primary care provider.

We are able to see children as soon as they are diagnosed with Down syndrome. Your initial visit may take several hours, as your child will be evaluated by our multidisciplinary team. Many babies are diagnosed with Down syndrome prenatally, and we encourage families to call with questions.

Please call 314-577-5639 for more information or to schedule an appointment with the Down syndrome center.

Your child may be referred to the Marfan clinic by his or her primary care doctor when your child shows signs of Marfan syndrome or other related disorders (e.g., Loeys-Dietz syndrome and familial thoracic aortic aneurysm dissection) or when there is a family history of Marfan syndrome.

During a visit to the Marfan clinic, your child will be seen by specialists in:

• Medical genetics
• Genetic counseling
• Pediatric cardiology

During your visit, our team will perform a genetic evaluation, which includes obtaining detailed family and medical histories, and perform a thorough physical examination, including an echocardiogram and EKG, if indicated. Additional evaluations and testing may be recommended.

Once the evaluation and physical are complete, our genetic counselor will explain your child’s diagnosis and what it means for the future, including recommendations for follow-up care and the likelihood that the diagnosis is a risk for others in the family.

The clinic is held from 8 am - 12 pm on the first Friday of each month in the Dallas Heart Center at Cardinal Glennon Children’s Hospital.

Please call 314-268-2700, ext. 3282 for more information or to schedule an appointment.

The neurofibromatosis clinic offers multidisciplinary care for children with this neurological condition. Depending on your child’s needs, you may see a variety of specialists during your visit to the clinic, including:

• Audiology
• Genetics
• Endocrinology
• Neurology
• Neuro-oncology
• Orthopedics
• Ophthalmology
• Otolaryngology (ENT)
• Psychology

This approach allows our physicians to discuss the needs of each child and offer a more encompassing plan of care.

The clinic is held on the morning of the first, third, and fifth Wednesday of every month.

Please call 314-577-5397 for more information or to schedule an appointment.

The spina bifida clinic is a multidisciplinary clinic for children with all forms of spina bifida. The clinic provides coordination of care between specialty services and follow-up of children who have been diagnosed and treated for spina bifida.

The clinic is staffed by both surgeons or advanced practice providers, as well as nurses, physical therapists, and orthotic specialists. By utilizing the spina bifida clinic, your child can see all their providers on one day in one location. Radiographic imaging is often scheduled that same day.

Spina bifida clinics are held the first and third Wednesdays of the months from 12:30 - 3:30 pm.

Please call 314-268-4178 for more information or to schedule an appointment.

The tuberous sclerosis clinic offers a multidisciplinary visit for children diagnosed with this genetic condition. Depending on your child’s needs, you may see a variety of specialists during your visit to the clinic, including:

• Cardiology
• Genetics
• Neurology
• Nephrology
• Neuro-oncology
• Ophthalmology

Other services are incorporated when needed. This approach to care allows our team of physicians to discuss the needs of each child and offer a more encompassing plan of care.

The clinic is held on the morning of the second Thursday of every month.

Please call 314-268-2737 for more information or to schedule an appointment.

The Way to Grow Turner syndrome clinic provides multidisciplinary care for girls with Turner syndrome. A pediatric endocrinologist, child psychologist, and dietitian are available in the clinic, and other specialists with expertise in Turner syndrome are available for consultations in the same building. In addition, the girls and their families have the chance to meet others with Turner syndrome for social and emotional support and receive informational materials at our Meet and Greet sessions.

The Turner syndrome clinic is offered offered six Monday mornings per year with appointments available from 8 - 10:30 am.

Please call 314-577-5648, option 2 for more information or to schedule an appointment.